Over 90% of People with Down Syndrome Who Live Past 57 Develop Alzheimer’s Disease

Our brilliant researchers at Harvard Mass General are working tirelessly to change that — thanks to the support of generous donors like you.

Thank You for Supporting a Chance at a Better Future

Woman holding a colorful painting at an art exhibition with people and artworks in the background.
Colorful butterfly illustration with orange and blue wings
Colorful abstract butterfly drawing with orange, blue, and black patterns.
Illustrated butterfly with blue and orange wings, surrounded by white dots

SUPPORTING SCIENTIFIC RESEARCH ABOUT THE LINK BETWEEN DOWN SYNDROME AND ALZHEIMER’S DISEASE

Get to Know Our Down Syndrome Foundation Based in Shreveport, Louisiana

For decades, people born with Down syndrome were sentenced to short lives without the care and support they. need to thrive. In the modern day, individuals with Down syndrome can live happy, fulfilling lives and live longer than ever before. However, as they live longer, it has been discovered that there may be a link between Down syndrome and Alzheimer’s disease that contributes to a higher likelihood of developing the disease.

Upwards of 90% of people born with Down syndrome who live past 57 develop Alzheimer’s disease. At Libbi Thomas Foundation in Shreveport, LA, we’re supporting research and studies into the link between Down syndrome and Alzheimer's across the country.

What Kind of Research Do We Fund?

Person wearing a beige apron in a greenhouse with plants and flowers.

Our Down syndrome foundation supports researchers and scientists who are working hard to establish fact-based findings about the link between Down syndrome and Alzheimer’s disease. With the support of our funding and the grants we offer, researchers hope to answer questions like:

Why do certain people develop Alzheimer's disease in their early 40’s and others not until their late 60’s?

Why do some people with brain changes characteristic of Alzheimer's never show symptoms of the disease?

Why do some individuals with Down syndrome develop dementia while others don’t?

WHO WAS LIBBI THOMAS?

Illustration of a butterfly with orange and blue wings

On November 4th, 1960, Libbi Thomas was born premature, weighing just four pounds, and with Down syndrome. At a time when most babies with Down syndrome were sent to homes to be cared for, Libbi's parents were determined to bring her home.

Libbi grew up to be a light in the lives of all who knew her. She was a creature of habit and loved to play practical jokes.

She overcame every obstacle in her life until she began to develop symptoms of Alzheimer's disease at 54. At age 60, Libbi passed away at her home, surrounded by her family and listening to her favorite songs.

After her passing, Libbi's family started our Down syndrome foundation to support the researchers, share Libbi's inspiring story and share other stories like hers.

Illustration of a butterfly with blue and orange wings and white dots.
Family posing on a beach with ocean in the background, wearing matching blue and yellow tie-dye shirts with white shorts.

Our Mission

Learn more about our mission & the goals of our foundation.

Family sitting on hay bales with autumn decorations in an outdoor field.

What We Do

Get more info about the actions we take to support researchers & spread the word about our cause.

A young woman and an older woman smiling while sitting with a baby on a patterned chair. The baby has Down syndrome and is smiling joyfully, holding the young woman's hands. The background features striped curtains.

Faces of the Future

See the smiling faces & read the stories of the people we’re fighting for.

Woman holding and smiling with a young girl in a park, with trees and balloons in the background.

Take Action

Learn more about how you can support our foundation’s cause.

A cluster of white daisies with yellow centers in a garden.

Want to learn more about Down syndrome advocacy nationwide?

NDSS logo with red text and blue accent

DON’T FORGET THEIR STORIES

Learn more about Libbi and other amazing individuals like her with Down syndrome and Alzheimer's disease.